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Robert Melvin ~Being Different~
2 Views • May 24, 2009
Description
Bob is the first person I ever heard utter the word Neurofibromatosis. Just weeks later I would hear the that same word when I was getting my physical for the NAVY.
Read about that here http://www.sideshowworld.com/tgodNLump&Bumps.html
Looking back. I feel privileged to have met him.Robert was a Great Man.
He started working Coney Island in 1949 and also toured with Sideshows till the mid 1980's. Bob even became a Star Attraction at times earning more than a thousand dollars a week. Read more on Mr. Melvin here http://www.phreeque.com/robert_milwin.htm
Some of the information in this video is outdated and or in correct. Joseph Carrey Merrick (John wasn't his real name) was found to have another medical disorder called Proteus Syndrome. Some do believe He may have had a combination of both Neurofibromatosis and Proteus Syndrome http://www.proteus-syndrome.org/ .
You can learn more about NF here http://www.nfinc.org and http://www.ctf.org
Segmental NF is one of the uncommon subtypes of NF.http://www.jpad.org.pk/april%20-%20june%20%202006/9segmenta%20neurofibromatosis.pdf
We report a young adult presenting with asymptomatic skin lesions- neurofibromas and café-au-lait macules- over localized areas of the lower back, affecting more than one segment. None of the family members were found to have features of segmental NF. Segmental NF may be misdiagnosed as a birthmark or remain undiagnosed for long periods of time, as the patients are often asymptomatic. Moreover, the clinical features are highly variable and range from a small area of skin involvement to involvement over the entire half of the body
Robert Owen Melvin, Bob Melvin,Neurofibromatosis,Segmenatl Neurofibromatosis, Being Different,The Man with 2 Faces,The Man with Two Faces.
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