Orgesticulanismus

https://filmow.com/orgesticulanismus-t59394/ Mathieu Labaye's short-movie, Camera etc (Belgium, Liège): http://www.camera-etc.be
Great tribute to his father Benoît Labaye, suffered from a multiple sclerosis at 29 years old. Benoît Labaye had been confined to a wheelchair since age 40 and died at 55 years old the 04.22.2006, as a result of a pneumonia.

In the movie, you can hear Benoît Labaye speaking:

"I think it's by the movement you appropriate your own life. By the freedom to come and go, to have gestures of love, tenderness, anger, whatever. When you are deprived of movements, as I am and as a lot of other people are, I think if you want to survive, you must reinvent the movement differently. And so what happens inside my head isn't purely brain, purely intellectual. It's a way of recreating an inner space which is also my freedom."

"When you live a severe handicap, when you live absolutely still, dependent, you live, in fact, something that can't be shared, that can't be