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Governance of Human Data in Synapse
Description
Sage Bionetworks - Hyatt Regency
How governance can enable more patient consent. Patients have traditionally been sidelined in medical research and need to be enabled to become activated partners. The current consent and privacy barriers will be highlighted along with multiple pilot projects to allow patients and scientists to work together in sharing their data. Such opportunities require new governance models for sharing data, tools and disease models."
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